Experience of hope in adult patients with advanced chronic disease and their informal caregivers : a qualitative systematic review protocol
Baptista Peixoto Befecadu, Filipa; Perrenoud, Beatrice; Behaghel, Ghislaine; Jaques, Cécile; Pautex, Sophie; Da Rocha Rodrigues, Maria Goreti; Larkin, Philip Joseph
2022

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Abstract

Objective: This systematic review will evaluate the experience of hope in adult patients with advanced chronic diseases other than cancer, transitioning toward end-of-life. The review will also evaluate the experience of hope in informal caregivers caring for adult patients with advanced chronic diseases other than cancer as they transition toward end-of-life. Introduction: Hope is an important resource that assists patients and informal caregivers to deal with difficult and complex situations, such as living with advanced chronic disease. Inclusion criteria: The review will include studies written in English, French, and Portuguese exploring hope. Qualitative studies focusing on adult patients with advanced chronic diseases other than cancer and/or informal caregivers will be considered. Studies with children as patients or parents as caregivers will be excluded. Methods: The review will search Embase, MEDLINE, CINAHL, PsycINFO, Web of Science, ProQuest Dissertations & Theses, DART-Europe E-theses Portal, and Google Scholar. The search will be conducted without date restrictions. Articles will be selected against the inclusion criteria by two independent reviewers and potentially relevant papers will be assessed in detail. Data will be extracted using a standard tool. The extracted findings will be synthesized using the meta-aggregation approach through assembling and categorizing data.

Details

Title
Experience of hope in adult patients with advanced chronic disease and their informal caregivers : a qualitative systematic review protocol
Author(s)
Baptista Peixoto Befecadu, Filipa (Institute of Higher Education and Research in Healthcare (IUFRS), University of Lausanne, Lausanne, Switzerland ; Chaire Kristian Gerhard Jebsen of Palliative Care Nursing, Palliative and Supportive Care Service, Lausanne University Hospital (CHUV) and University of Lausanne, Lausanne, Switzerland ; Lausanne University Hospital (CHUV), Lausanne, Switzerland ; Geneva University Hospitals (HUG), Geneva, Switzerland)
Perrenoud, Beatrice (Lausanne University Hospital (CHUV), Lausanne, Switzerland ; La Source, School of Nursing Sciences, University of Applied Sciences and Arts Western Switzerland (HES-SO), Lausanne, Switzerland ; Medical Library, Lausanne University Hospital (CHUV) and University of Lausanne, Lausanne, Switzerland)
Behaghel, Ghislaine (Institute of Higher Education and Research in Healthcare (IUFRS), University of Lausanne, Lausanne, Switzerland ; Chaire Kristian Gerhard Jebsen of Palliative Care Nursing, Palliative and Supportive Care Service, Lausanne University Hospital (CHUV) and University of Lausanne, Lausanne, Switzerland ; Lausanne University Hospital (CHUV), Lausanne, Switzerland)
Jaques, Cécile (Medical Library, Lausanne University Hospital (CHUV) and University of Lausanne, Lausanne, Switzerland ; Bureau d'Échange des Savoirs pour des praTiques exemplaires de soins (BEST): A JBI Centre of Excellence, Lausanne, Switzerland)
Pautex, Sophie (Geneva University Hospitals (HUG), Geneva, Switzerland)
Da Rocha Rodrigues, Maria Goreti (Institute of Higher Education and Research in Healthcare (IUFRS), University of Lausanne, Lausanne, Switzerland ; HESAV School of Health Sciences, HES-SO University of Applied Sciences and Arts Western Switzerland)
Larkin, Philip Joseph (Institute of Higher Education and Research in Healthcare (IUFRS), University of Lausanne, Lausanne, Switzerland ; Chaire Kristian Gerhard Jebsen of Palliative Care Nursing, Palliative and Supportive Care Service, Lausanne University Hospital (CHUV) and University of Lausanne, Lausanne, Switzerland ; Lausanne University Hospital (CHUV), Lausanne, Switzerland)
Date
2022-08
Published in
JBI evidence synthesis
Volume
August 2022, Vol. 20, No. 8, pp. 2025-2031
Pagination
8 p.
DOI
https://doi.org/10.11124/JBIES-21-00364
ISSN
2689-8381
Keywords
adult patient ; advanced chronic diseases ; hope ; informal caregiver ; palliative care
Article Type
scientifique
Faculty
Santé
Branch
Soins infirmiers
School
HESAV
La Source
Institute
Secteur Recherche et Développement (Ra&D) de l'Institut et Haute Ecole de la Santé La Source
Unité de recherche en santé, HESAV
Record Appears in
Scientific Articles
Global

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