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Abstract
Introduction : La sclérose en plaques est une maladie chronique dégénérative qui affecte le cerveau et la moelle épinière. Caractérisée par une symptomatologie polymorphe, elle modifie la représentation et l’expérience vécue du corps. Faire face aux transformations subies nécessite de recourir à plusieurs approches thérapeutiques dont la physiothérapie. But de l’étude : Fondé sur le point de vue de personnes atteintes de sclérose en plaques, cet article a pour objectif d’explorer les limites corporelles qu’elle induit et d’investiguer la manière dont les exercices de physiothérapie participent à leur gestion. Méthodes : Une recherche qualitative a été menée auprès de 18 personnes atteintes de sclérose en plaques. Des entretiens semi-directifs, réalisés après la proposition d’un programme d’exercices à domicile par des physiothérapeutes, ont été analysés grâce au logiciel d’analyse de contenu MAXQDA. Résultats : Les participants rapportent divers symptômes – fatigue, troubles de l’équilibre, de la motricité et de la coordination des mouvements, douleur, incontinence urinaire ou fécale, troubles oculaires et cognitifs – qui confrontent l’individu aux limites et incapacités d’un corps défaillant. La réalisation des exercices de physiothérapie accroît cette perception, mais peut potentiellement permettre d’agir sur la maladie par le truchement d’un renforcement des aptitudes physiques, d’une amélioration du bien-être psychologique et de la participation à la vie sociale. Conclusions : Complémentaire aux traitements médicamenteux, la pratique régulière des exercices de physiothérapie concourt à une gestion de la sclérose en plaques qui peut contribuer à déplacer le curseur en matière de limites à la mobilisation du corps et d’actions possiblement réalisables.
Introduction: Multiple sclerosis is a chronic degenerative disease that affects the brain and spinal cord. It is characterized by polymorphic symptomatology that changes the way the body is represented and experienced. Coping with these changes requires various therapeutic strategies, including physiotherapy. Purpose of the study: Based on the perspective of people with multiple sclerosis, this article aims to explore the bodily limitations it imposes, and to investigate how physiotherapy exercises help manage them. Methods: A qualitative study was carried out with eighteen people with multiple sclerosis. Semi-structured interviews, carried out after physiotherapists proposed a home exercise program, were analyzed using MAXQDA content analysis software. Results: Participants reported a range of symptoms—fatigue, problems with balance, motor skills, and movement coordination, pain, urinary or fecal incontinence, and eye and cognitive problems—which confronted them with the limitations and incapacities of a failing body. Physiotherapy exercises reinforce this perception but may also have the potential to act on the disease by improving physical skills, psychological well-being, and participation in social life. Conclusions: As an adjunct to drug treatment, regular practice of physiotherapy exercises contributes to the management of multiple sclerosis. This practice can help shift the boundaries in terms of body mobilization limits and the range of achievable actions.
Introduction: Multiple sclerosis is a chronic degenerative disease that affects the brain and spinal cord. It is characterized by polymorphic symptomatology that changes the way the body is represented and experienced. Coping with these changes requires various therapeutic strategies, including physiotherapy. Purpose of the study: Based on the perspective of people with multiple sclerosis, this article aims to explore the bodily limitations it imposes, and to investigate how physiotherapy exercises help manage them. Methods: A qualitative study was carried out with eighteen people with multiple sclerosis. Semi-structured interviews, carried out after physiotherapists proposed a home exercise program, were analyzed using MAXQDA content analysis software. Results: Participants reported a range of symptoms—fatigue, problems with balance, motor skills, and movement coordination, pain, urinary or fecal incontinence, and eye and cognitive problems—which confronted them with the limitations and incapacities of a failing body. Physiotherapy exercises reinforce this perception but may also have the potential to act on the disease by improving physical skills, psychological well-being, and participation in social life. Conclusions: As an adjunct to drug treatment, regular practice of physiotherapy exercises contributes to the management of multiple sclerosis. This practice can help shift the boundaries in terms of body mobilization limits and the range of achievable actions.